Tuesday, 22 January 2013


Well it’s been a long couple months for me that’s for sure.  In and out of hospital, MRI’s that are being interpreted in different ways.  The first interpretation was that there has been no change to the original tumour (great news) but wait wasn’t there a second one?????? (Spooner) WOW!!!!! God must’ve performed a miracle (that’s what I’d call it) my oncologist told me not to throw a party yet but it looks as though the second one is gone.  So I was as my mum called it ‘being cautiously optimistic’.  You will not believe the gong show that came next.  Did you know that BCCA does not easily release the records of cancer patients to oncology departments in hospitals where the patients are being treated (according to the hospital)? Madness right?!  Or maybe the procedures and/or staff are inefficient.  I know that’s rather judgemental and I apologize for that but it’s frustrating beyond understanding when you are trying to find out if you have another cancerous tumour or not and no one is giving you any answers and everyone is blaming the inefficiency on someone else.  Take one picture, hold it up beside the original and tell me what you see, Is there a spot there or not? Sounds pretty easy to meJ

We wanted LGH to get the results of the MRI that I had on September 11, 2012 from BCCA because that is the latest one that showed the second tumour.  That seemed too complicated for someone because it took from Dec. 18-Jan. 16 to get the two compared and that was at my neuroncologist appointment at the BCCA.  So YES the second roommate is still living with Tobias (my first, named in 2007) but the good news was that the wretched chemo they had been pumping into me had shrunk Spooner a little and he had moved into a smaller room.  Not much smaller but a downsize none the less.  I’ll take that over nothing at all any day. 

I have had to have bars installed in my bathroom because my balance sucks and I fell.  It’s almost like being back in gymnastics except I don’t think I can swing from these ones.  All joking aside it just one more bloody thing you can't do and one more thing that’s been taken away from you.  Even had me sit on a seat when I showered for a while.   Well that didn’t last long.  I’m too stubborn, can you tell?  My poor parentsJMy poor doctors!!!

I was off work for a very long time but God is good and provides and my church (that I work for) was an absolute, incredible support and they all came around me and loved on me and I could not have been more blessed. 

So what’s the update you may be asking???????

I am staying on the chemo until this type stops working, which inevitably it will and then I will switch to another type which I am super excited about…..lets mix up the toxins a bit….I like varietyJ  If I stay on this one then I’m just going to get bored, so I say, “keep it coming.”

So I’m giving each day to my Heavenly Father and asking the Spirit to take control of my thoughts and my mind and that Jesus hold my hand as I go through each day.

This is the only way I know to get through.




Thank you for all your continued prayers.  Bless you all.

Mel

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