Tuesday, 26 February 2013

Finally, nothing exciting....


Well fortunately I don’t have much to report.  Nothing as exciting as last time when I was told I was going to die and then told “WHAT?  You are not going to be dyeing from this anytime soon.”

I took another round of chemo last Tuesday (Feb. 12th) I had a good week off work last week to rest.  Felt fine, I have noticed that the week after my chemo my dizziness comes back in the evenings after my final dose of seizure medication.  Not a big deal when compared to how I used to be.  I’ve also been strictly monitoring my blood work to ensure I don’t run into any preventable seizures.  So far, so good.

I have an MRI scheduled for March 13th and I will meet with my oncologist on the 18th to discuss where if anywhere do we go from here? LOL seriously, can you imagine if they say they're gone?!  and imagine if they are right!  How amazingly awesome would that be?  I dont actually think that will happen, and I'm not being negative I just believe that God isn't finished using this yet.
You know I said to my mum the other day, If I had a choice I wouldn't ask for this but I also wouldn't change how it has changed me and the effects it has had on me and how God has created so many relationships along this cancer journey we walk together.

So that’s about it I think, oh my daughter and I were going to do a spa day when we thought I only had a year and seeing we never do know when our times up I have us booked in for body cocoon wraps on March 9th at Spa Utopia. 

 As I had said previously, I don’t want to waste time because only God knows how much time we have left on this world and I plan to make the most of it.
 
I am linking this song 'Desert Rose' by Sting purely because I have always loved it:)
 

Thankyou all for your continued prayers.
Bless you
Mel

Friday, 8 February 2013

An extra week off


So I tried whole-heartedly to go back on chemo last Monday but my blood said "nope". My platelet levels were too low which means if I'm exposed to any nasty bug I am more likely to catch it and it would be much worse because I’d have a harder time fighting it. As if cancer wasn’t enough:) I think my blood was feeling left out.

 
So I'm having my blood checked again tomorrow and the level was at 55 and it needs to be at a minimum of 75 to take another round, I'm feeling ready to take another round so "bring it on!!!!'

 
I heard from Princess Margaret Hospital in Toronto and they agree with the treatment that Lions Gate Hospital has me on and would be treating me the same way. That's encouraging. I'm still staying on top of everything and I’m not taking any half-ass answers on any questions. I've learned and I know I’ve mentioned this before, I will be my own advocate.

God's like this huge pillar of strength behind me and that is what I lean on especially when I need to be verbally strong while maintaining a certain level of decency, for those of you that know me know that this is something that doesn't come easily to me and only thru the grace of God am I able to do it.

He is in and he is my everything.
http://www.youtube.com/watch?v=0bhJHMoDsdE

thank you for all your prayers.
bless you all.
mel:)

 

Friday, 1 February 2013

This will be hard to believe...


There has been so much drama going on I truly am having a hard time wondering where to even start. 

On January 16 I was told by a Dr.  that my second tumour had become so aggressive that they wouldn’t be able to control it and although the chemo was shrinking it, it was not enough.  He said they are very worried and I asked if I should be too? Which he answered “YES”.  What I really meant to ask was if I should be worried for my life.

The next day a social worker calls me and I asked her to ask the question that I meant to ask and get back to me…. (Just when I thought my life couldn’t get crazier) I received a phone call at work and after a song and dance I was told the Dr. said I have about a year or so before I die.

Great!!!! So I called my pastor, who I work for, started to cry and asked him to pray for me.  All I could think about was how God HAS to be in this because there’s no way I could tell my daughter and my family this shitty news.  Well of course I did and I broke so many hearts it broke mine time after time.  Each time I told someone what was going to happen my heart broke, whatever was left of it because I don’t think I could’ve given Alex worse news. 

Alex was amazing, we prayed together knowing that God hadn’t left us and although this was horrible, He was in this place and would get us through.  We decided as a family to journey this together and Alex and I would go with Jesus one step at a time and not think about the ‘lasts’; no point wasting time.  I was determined to make the best of every relationship, all those times I wanted to spend time with Alex when she was growing up but couldn’t cause I was working so much, I was going to do it now.

 But something was bugging me a little bit.  How did my second tumour get so bad so quick?  I felt fine, thought I looked fine, even seemed to get my dizziness under control…this was just weird.  Well the Dr.  is a professional and I am not so …I will just double check when I see another Dr. on the 29th of January.

During this time my Dad had been in touch with Princess Margaret Hospital in Toronto.  They have a reputation to be one of the leading research and treatment facilities for cancer in Canada (especially my kind) So I wasn’t going to wait entirely for this next Dr.’s appt.  I was obviously expecting to hear the same thing; after all they are both specialists in the same field.  I mean who tells a patient they have an expiration date if they are not pretty sure??!! Apparently, this guy does.

I went back on the 29th to see the next Dr.  and when I asked him how it got so bad so fast?  He looked at me as if to say “what the hell are you talking about?”  So I relayed the news that I had been told and he said that he has no idea why I was told that because although my second tumour is more aggressive it is shrinking with the chemo and when that stops working there are other treatment options we will try.  Well I started firing questions because I was furious.  Don’t misread that; I was thrilled that I was going to live but livid that I had put my daughter, family and friends thru such emotional hell.  Apparently the first Dr. was a radiologist oncologist not a neuroncologist so he shouldn’t have been telling me anything without speaking with the neuroncologist who specializes in brain cancers and treatments.

 

So what to do when you have two different professional opinions on your life?  Well you continue praying and then you Fed Ex your images and your entire medical file to Toronto to Princess Margaret Hospital.  It just arrived todayJ

 

I can say with all truth that I didn’t stop praying the entire time when I first heard the news.  I felt God beside me the whole time, He was there when I told Alex and in our home praying with us every night.

So the bottom line is only God knows my expiration date like the rest of you and that feels so amazing.  I am not wasting time on petty things and the most important gift from God that I took away was to appreciate my family and friends more and see the little miracles that God gives me daily.

Thank you for your ongoing prayers and please pray for my chemo to continue to work, regardless of how much.

I am starting another round on Monday the 4th.