Thursday, 20 November 2014

Liver still not playing nice

So I had my liver enzymes checked yesterday and they are still rising which is the wrong direction, if my white blood cells were doing that then that'd be awesome but they're not all the liver functioniong ones are. My GGT is the biggie that everyone seems to be paying so much attention to I googled it and the fancy name for special Dr.'s like my gasterenterologist (took me ages to pronounce that right)up until then I was just referring to him as the liver guy or Dr. depending on who I was talking to, so the GGT stands for 'Gamma-glutamyl transferase'. So here's what I was told I don't know how long ago now I think it was in the summer my liver blood work will be done monthly and my liver guy will monitor my GGT and if it sky rockets to somewhere like 1100-1200 range then he'll call me in and look at doing something else until then it's basically 'don't call us we'll call you' so i'm fine with that. He figures about 1-1.5 years until i'm back on track not so fine with that though unfortunately I have no choice. I pray before I leave my house to go anywhere including my own family's houses, restaurants, friend's homes, anywhere that takes me out of my own home that my body will behave and that everything I eat will settle in. It's been this way for well over a year already I truly empathise with people that suffer in these types of suffering bubbles. I think I've said this in previous blogs if I have well consider this as consistency (sp) in story telling, my mum's pastor said "we all suffer,we just suffer differently", my vision then was people in individual glass bubbles as far as my eyes could see, they were their own suffering bubbles and the further down this path of cancer I go the more suffering bubbles I acquire therefore allowing me to empathise with more people. But of course I too complain, I might be able to empathise with some peoples sufferings but that doesn't mean i'm ok with my own any less then your ok with yours. I am now having MRI's every 4 months instead of 3 so my next one is in March and I'm experiencing some minor neurological changes, i'm stuttering a bit and I'm having a hard time trying to find my words when i'm speaking told my neurologist at my last appointment with my Vancouver Dad and he right away said that they were side effects from the radiation and my oncologist suggested i change one of my seizure meds and I was not down with that. Once you get a cocktail that works the last thing you want to do is mess around with it. So I told him that my neurologist said it was the radiation and my radiologist had told us this would happen so I was inclined to go with my neurologists opinion but as they are both on my team I said "You guys figure it out and if he (neurologist)feels strongly about changing my meds then I'll 'consider' it but if I don't hear from him then I'm not doing anything!" Well that meeting was Septemer 30 and I never heard about it again. So that's that. My song. 'Everything' is an oldy but a goody. I sat one day in my red Chevy Cavalier (loved that car) with my Godmother,who I chose, and I had heard this song before on the radio and again it came on and I asked if she thought it sounded like a Christian song and sure enough it is a Christian song so now it's like our song and Auntie Barb you've been on my mind a lot lately and I know you aleays read my blogs so this ones for you because He really is our everything, when we are in our suffering bubbles He is our everything. There is a man named Colton Dixon and he was on American Idol and he made it to I think it was the top 2 and this was his final song sung on his knees. Look it up on Youtube. Pretty great. Bless you all and please continue to pray for healing in my liver bubble. thank you all. Mel:):)