We all suffer, we just suffer differently.

Well this is new, not only are my feet ridiculously itchy to point of being a new form of torture, if it’s not already.  The roof of my mouth just started to itch, nice, how on earth am I going to soothe that one??? As it is I have already been itching my back with back scratchers, letter openers, and people ‘raking’ it for me, backs of chairs and other random objects. It’s amazing what you can use to satisfy an itch when you need to.  I thought this would start to feel better.  Well it just feels to be getting worse not better.  My brother and girlfriend (like a sister to me) suggested I try lemon but its under the skin in my nerves caused by a reaction from the anti seizure medication so to put anything topical on it at this point is just more money wasted.  Well I’m off work in 37 minutes and Simon and Jackie gave me a London drugs gift card for my birthday  so I’m going to buy a movie and watch it this afternoon and do some itching.

I don’t have a song today, just a request.  Please pray this madness stops like now.

Thanks

Itchy MeJ

 

Actually, There’s always a hopeful song because God promises to never leave us and that deserves a song…

http://www.youtube.com/watch?v=DXDGE_lRI0E

It's My Birthday...

Well today is my birthday first and foremost.  I like everyone to know it’s my birthday, not for the reasons you are probably thinking.  I love it because it’s the one time of the year you can pretty much guarantee people take the time to think of what to write to that special person.  Bible verses are spoken to you; I don’t think I have ever had so many nice things said to me then on this day.  God made this special day for me just like he’s made you all special days…If that’s not a good reason to celebrate then I don’t know what is.

Ok, now what you all really want to know.  My neurologist seemed to agree with my Vancouver dad and me.  (Re; itchy skin torturing my body as well as my hair falling out again) so I’m back to rocking the head scarves.

I am starting a new anti seizure drug on Sunday (27^th) and then it’s about a 6 week process of coming off one to slowly get on the other one.  It’s a slow process; if it makes me stop itching then I can suck it up for a few months more.  The reason I am starting it on Sunday is because my birthday rib dinner is Sunday and I want to be able to enjoy them.  It’s the best dinner I have all year long and I’ve had good ribs but none compare to my mum’s.

I have an mri scheduled for November 18^th and then the results on the 20^th.  How great will that be if I get another three months off chemo?  I’m praying.

I think that’s it, nothing else really to say.  Please continue to pray for my itchiness especially on the souls of my feet, it’s like torture, no kidding.

Thanks for all your prayers, And a happy birthday to me.  Thank you all for your happy birthday wishes and your kind words of love and encouragement.  Bless you all.

And if you don’t find this song funny then I think you may want to check your humour on the humour scaleJ

MelJ

http://www.youtube.com/watch?v=j4QE3apQxjQ

I need you Jesus...

Last night I was up all night.  I was so itchy and just couldn’t get to sleep.  Alex came in my room about 1:30’ish and rubbed cream on my back and then after about 30 minutes of rubbing it into my back and arms she goes and gets a hand towel and continues for about another 45-60 Minutes until she fell asleep.  I could not thank her enough for taking such good care of me.  Unfortunately I still couldn’t get to sleep so I started emailing out asking for prayer.  I don’t think I have ever talked to god so much…that’s what I did; I itched, spoke with god, prayed and did that all night.  Absolutely not a minute’s sleep.

I got out of bed at 7:00a.m (no point staying in bed.  It seemed like a reasonable time to get up.)

I started to get ready and it hit me like a seizure!! I don’t think I took my sleeping medication, so sure enough it was still in the tray.  Frustrated with myself because the body does a complete over haul when it has been up all night.

My tummy goes that familiar place of heaving over the toilet but there was nothing in me so I left that feeling like I’d just given myself a full on 6 pack.

So I went to get my oatmeal and praying the whole time that god would hold it down.  So far so good.  My Vancouver dad (obviously) is picking me up after work because I’m just too tired.

Fortunately I’ve learned all be it the hard way, not to commit to too much.  It’s just too hard so today all I have planned is to show Alex how to make shepherds pie.

I have a neurologist appointment on Tuesday the 22^nd and I will be discussing the itching issue I am having.  Until more excitement please continue praying.

Bless you my friends

Me. 

Bless you my friends

MeJ

http://www.youtube.com/watch?v=2j0XdAigjJE

Oh to have long hair again.....

It’s been a while I know but nothing really exciting has been going on.  The itching still persists and is impeding my day to day activities.  I am seeing my neurologist next week so we will see if he thinks its an allergic reaction to this new seizure med they have called ‘keppra’.  I had my last filling put in this past week.  It left me feeling very sore and bruised but I guess it could’ve been worse.  And now my ‘weird’ sarcasm has turned my ‘not functioning liver’ into a thankful “It could be worse, it could be more cancer”.  Sometimes a little black humour is needed to lighten things up.  At lease it works for me.

My balding spot is spreading, not sure why my hair is still falling out but its hide able at this point and there’s always wigs.  Oh, if I get a wig I am going to choose a long one, then I don’t actually have to go through the pain of growing it out.  I’ll just have long hair.  Top that!!!!  Cancer’s perksJ (that’d be my twisted sense of humour and a coping mechanism that God has blessed me with)

having an awesome time with my girl.  so great to hug her.  she loves where she is and has really made it home which warms my heart.

thanks again for all your prayers.

mel.

 

http://www.youtube.com/watch?v=DwHj7l1M9g4