For the first time ever.....a multi-posting...

September 20^th:

Last night I almost tore off my skin it is so itchy as if mosquito’s have been feasting on me for days. Unbelievably itchy. I smothered myself in lotion but it provided no relief. I considered sand paper but figured I’d get an infection or something worse and I have enough to deal with. So today after work my Vancouver dad is taking me to the body shop as they have what’s called body butter and it worked when I first started treatment oh so long ago, I assume it still will. Please pray that it does because this feeling is horrible.

This section is from September 18^th

Heh everyone how’s it going?  Just wanted to bring you up to date on my latest blood work.  I had it taken this morning and thanks to VCH,  I was able to check the results online at My E-Health, well the good news is that although my white and red blood cells are still below what they should be, they are headed in the right direction.  My liver enzymes are still all out of whack.  I was expecting to see an improvement with my Gamma GT levels but they have gone up all be it minimally up is up.(wrong way).  This is one that I thought for sure would’ve come down, but I am clearly wrong.   Shhhhhhhhhhhhhh I don’t want that getting out.  I’m rarely wrong so I don’t want people finding out. LOL

So; I have blood again in October and November, neurologist in October, MRI and results in November.  I’m going out of 2013 with a bang of appointments.  I don’t think I’ve ever had this much action before. 

I think that’s it for updates.  No more sleep walking (that I’m aware of)  I’ve been eating a bit more the last few days with little or no nausea which is great as I’ve weighted in at 105 lbs., so I’ll continue to be grateful for that and my body can figure the blood out.  If I can go through a day and not feel nauseas then I’m a happy camper.  And praise God. (Love you Lord & thanks)

Alex is coming down soon (Oct. 4th or 5th) for the month of October.  I’ve redone pretty much the entire apartment to make it my own.  It will be interesting to hear what she thinks. 

I would appreciate it if you would pray for a family member or someone you know who is hurting for one reason or another.

Thanks guys for your ongoing prayers.  If God answers any of your prayers in a miraculous way, please post or email because it is encouraging to hear what God does with people that suffer as we all suffer differently.

Bless you all.  Enjoy the song.  I have a feeling that a few of you will find this song very comforting.

http://www.youtube.com/watch?v=q-xmBDAK5c4

Melanie

 

Apparently I needed some sense knocked into me.....

This past Saturday I went to bed because I was really dizzy (like the good ole’ days) well, the routine is; I go to bed and wake up feeling as normal as I get.  Well I wasn’t anticipating the change of rules.  I woke up sometime during the night and I was just craving something cold and refreshing in my mouth so remembering that I had grapes I pulled my feet to the side of my bed, not bad, stood up, a tad dizzy, started to walk, to my surprise I was even more dizzy then when I went to bed, “what’s going on here, we had a deal!!!” (To body)

Well as I tend to do my own thing, I am stubborn and decided to forego what my body was doing and I would push thru, get my grapes and go back to bed and not speak of this to anyone. (What happens in Vegas stays in Vegas mentality)

Well I desperately tried to steer my body from my room into the kitchen which at best is only 7’ish feet.  The front door looked so inviting (this lies a tad beyond the kitchen entrance) I guess I wanted to get close and personal because I slammed into it head first.  I thought for sure one of the neighbours would call the police but no one came…..  In my head I said “oh s*** that fri**** hurt” then I turned around after gaining my balance to some extent and struggled back to my bed sadly…no grapesL

Oh, it doesn’t end here.  I had 2 plumbs in a bowl Monday night and when I woke up there was only one plumb and a piece of paper towel in my bedroom that had been used for a plumb.  I have no recollection of getting up to get a plumb what so ever.  The night before that however, I got up to use the washroom in the middle of the night and remember getting myself jammed against the cabinet on the floor and I couldn’t pull myself up but I was aware of what was happening and when I woke up I had a bruise on my shoulder (upper arm)

So my Vancouver dad suggested that I put some kind of string across my bedroom to see if I am in fact getting up in the night and just not remembering or what.  Because if I’m getting up and don't remember then this is a conversation that I would need to have with my Dr.

The change over of my meds is not going to bad.  I’m taking it really easy to make sure that I am getting enough rest.

 

The Holy Spirit has and continues speaking and comforting me thru music and the song I have attached is particularly moving with the choir in the background.  Everytime I hear it I get a lump in my chest and tears well up in my eyes, enjoy.

"i see you there..."

http://www.youtube.com/watch?v=1U9jJJdbgjE

Thanks for praying for Alex, she is now my little bush girl with her 'L' and is a happy, happy girl.  She has asked me to tell everyone as she's just thrilled so please consider yourselves told.  Please continue to pray for her as the grey days start to head their way.

Bless you all for all your prayers for my family.